About the 4th European Conference on Rare Diseases 2007 in Lisbon
Acknowledgements and Credits
400 participants from 35 countries shaped the future of rare disease policies in Europe
1 Opening speeches 27
1.1 The word of the President of Eurordis 27
1.2 The Directorate General of Health of Portugal 30
1.3 The State Secretary of Health of Slovenia 31
1.4 The European Commission
– DG Health and Consumers’ Protection
2 European Policy
3 Policy and implementation : European, Regional, State and Local Policy
4 European Research and Networks
5 New treatments and orphan drug development
6 Information services
7 Patient driven innovative project s for rare diseases
8 Addressing all patient needs, beyond medical care
9 Recent Ad vances Quality Assessment relevant to Rare Diseases
10 Conclusions
Index
List of Participants
308 pg
